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Archive for the ‘Public Policy’ Category

Legislative Action Alert

Wednesday, October 21st, 2009

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The Trisomy 21 Translational Research Parity Act of 2009 (“21 Act”) has been introduced in Congress and is aimed at expanding, intensifying, and coordinating Down syndrome translational research across the National Institutes of Health (NIH), the Centers for Disease Control and Prevention, and other Federal agencies. 

The NDSS Public Policy Center has issued an Action Alert asking for assistance in identifying and securing more co-sponsors for the legislation.  To learn more about the bill and how you can help by contacting your Congressional Representatives: “21 Act” – ACTION ALERT

Survey Request from NDSC/NDSS

Friday, October 2nd, 2009

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NDSS and NDSC are jointly requesting parents to complete a survey regarding the extent to which restraints. seclusion, and aversive procedures have been used with students with disabilities and special needs in public or private schools, or in residential facilities.  The survey is available for completion until  October 12th.  For more info and survey click here: NDSS/NDSC SURVEY