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Archive for September, 2011

Families report happy lives in first survey of impact of genetic condition

Thursday, September 29th, 2011

As parents of children with Down syndrome, I’m sure we can all agree that there are happy times and sad times, and times when having a child with a disability can pose some frustrations and inconveniences. 

For me personally, I’ve definitely experienced all of the above, but I also know that my daughter has caused me to pause at times in my life so I can appreciate something really beautiful that I might have missed had she not been there to direct me.  I’ve learned a new kind of patience and love, and I’ve met wonderful people I never would have known had she not been born with that extra chromosome.

The link below will take you to a story about a young lady named, Melissa, who has already accomplished so much in her young 25 years.  She is loved by her family and friends, and she has that ‘extra’ something special.

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NDSS Action Alert: submit by this Friday, September 30

Wednesday, September 28th, 2011

TAKE ACTION TO ENSURE PREGNANT WOMEN AND FAMILIES GET ACCURATE AND UP-TO-DATE INFORMATION ABOUT DOWN SYNDROME

ADVOCACY ACTION REQUESTED: Submit your comment on HHS Regulation by this FRIDAY, SEPTEMBER 30, 2011.

We urge you to visit the NDSS Advocacy Action Center at the link below.  There you will find all the details on this call to action, as well as detailed instructions of what is needed from you.

NDSS Advocacy Action Center

Thank you!

There’s still time! But you must order today, 9/13/11.

Tuesday, September 13th, 2011
Today, September 13, is NATIONAL CELIAC DISEASE AWARENESS DAY!
 
Many individuals with Down syndrome are diagnosed with Celiac Disease.  Woodbine House is offering a special deal on books to help you and your child enjoy planning and preparing meals that are appropriate for those with this condition.
 
Today only, Woodbine House is offering the 3 books listed below for 20% off:
 
Gluten-Free Kids
Raising Happy, Healthy Children with Celiac Disease, Autism, and Other Conditions
 
The Kitchen Classroom
32 Visual GFCF Recipes to Boost Developmental Skills    
 
INCREDIBLE EDIBLE GLUTEN-FREE FOOD FOR KIDS (includes 150 Family-Tested Recipes) 

See promotion    

Sister with Down syndrome inspires family

Tuesday, September 6th, 2011

Everyone needs to take a moment out of their day to watch this video!  I had to grab some tissue, so you have been so advised.

This is a great segment that aired on The TODAY Show’s ‘Everyone Has a  Story‘.  Leah Stodden, the middle sister of three, is a talented pianist, she’s engaged to a handsome young man, and she’s an inspiration to her family.  She also has Down syndrome. 

Watch video

DSAOC is honored to be among charities receiving luncheon opportunity at the Anaheim White House Restaurant

Thursday, September 1st, 2011

The Down Syndrome Association of Orange County was among the 200+ Orange County Charities in attendance at last evenings event at the Anaheim White House Restaurant.

Owner, Bruno Serato, hosted the event to recognize Orange County charities, and to donate luncheons to organizations for their own fundraising events. 

Mr. Serato ended the evening donating almost $800,000 in value toward these luncheons to be held at the Anaheim Whitehouse Restaurant.

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