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Archive for April, 2014

Have you registered for DS-Connect? The National Down Syndrome Registry

Wednesday, April 2nd, 2014

The National Institutes of Health (NIH) has launched DS-Connect, supported by the Down Syndrome Consortium.  The Down Syndrome Consortium fosters communication and idea-sharing about Down syndrome.

What is DS-Connect?

  • Helps connect people with Down syndrome to scientists who study Down syndrome
  • Promotes research opportunities in the Down syndrome community by collecting information scientists can use
  • Helps health professionals improve how they treat people with Down syndrome
  • Helps scientists develop new treatments that may improve the quality of life for people with Down syndrome

Please take a moment today to register.

Click the link below for instructions on how to register, and who to contact if you have questions.  Thank you!

https://dsconnect.nih.gov/files/DS_Connect_flyer.pdf

Down Syndrome Registry NIH DS-Connect2

DSAOC Self Advocates take part in the NDSC Self-Advocate Resolution Video

Tuesday, April 1st, 2014

The Down Syndrome Association of Orange County (DSAOC) was thrilled to have some of our Orange County Self Advocates featured in this resolution video!   Not everyone that we taped made it into the final video, but you all did an amazing job!

This video was produced and released by the National Down Syndrome Congress (NDSC) for World Down Syndrome Day 2014.  In case you missed it, here it is:

http://www.youtube.com/watch?v=SRTwSsOT114

NDSC Resolution 2014 image for blog