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Resources
Local Support Organizations
There are many local organizations that can support and assist you with your child’s growth and development. Information about other local agencies can be obtained through DSAOC or any of the below-listed groups. A few prominent local support organizations include:
DSAOC
151 Kalmus Drive, Suite M-5
Costa Mesa, CA 92626
Tel: (714) 540-5794
Fax: (714) 540-5872
Website: www.dsaoc.org
Email: jwagner@dsaoc.org
DSAOC is the only Orange County service organization dedicated solely to serving those in the County affected by Down syndrome. For more information about services and programs from DSAOC, please refer to the brochure in the first pocket of this Guide.
Family Support Network
“Camp TLC”
12862 Garden Grove Blvd. Suite E
Garden Grove, CA 92843
Phone: (714) 590-0023
Fax: (714) 590-0028
Website www.familysupportnetworkca.com
Email: fsnca@sbcglobal.net
The Family Support Network was founded in 1985 by a group of concerned parents, and has now developed into an important community resource for families of children with special needs. Their mission is to provide services and resources that help children with special needs and their families reach their full potential. They do this in a variety of ways, including the offering of the popular “Camp TLC”.
Comfort Connection Family Resource Center
801 Civic Center West
Santa Ana, California 92702
Phone: (714) 558-5400
Fax: (714) 542-5634
Email: ccfrc@comfortconnection.org
Comfort Connection is a state-funded family resource center located in the Regional Center building in downtown Santa Ana. Comfort Connection offers information and support to parents with children of all disabilities, including Down syndrome. Comfort Connection provides many services, including parent to parent support, parent trainings and educational workshops, a resource fair, a quarterly newsletter, a brochure on support groups, an Event Update, a website and a resource and lending library.
UCP of Orange County
3010 W. Harvard Street
Santa Ana, California 92704
Phone: (714) 557-1291
Fax: (714) 557-4796
Website: www.ucpaoc.org
United Cerebral Palsy/Orange County offers a variety of programs through its Family Support Services Unit. Open to families with children who have Down syndrome, these programs include community education, parent connection, respitality, special sitters and many other interesting and helpful services.
Regional Center of Orange County
3111 North Tustin Street, Ste 150
Santa Ana, California 92704
Phone: (714) 685-5555 (24-hour)
Fax: (714) 282-7910
TTD (714) 685-5575
Website: www.rcocdd.com/
Regional Center of Orange County is a private, not-for-profit corporation contracting with the State of California for the provision of services to persons with developmental disabilities pursuant to the Lanterman Act.
Team of Advocates for Special Kids (TASK)
100 W. Cerritos Avenue
Anaheim, California 92805
Phone: (714) 533-8275
Fax: (714) 533-2533
Website: www.taskca.org
Email: task@yahoo.com
TASK is a non-profit corporation that provides parents of children with disabilities with support in seeking and obtaining early intervention and educational, medical or therapeutic services for their children. Among other services, TASK provides information on early intervention, transition to public schools, legal rights and technology.
National Support Organizations
DSAOC is affiliated with the following two national Down syndrome organizations, both of which are valuable resources:
National Down Syndrome Congress (NDSC)
1370 Center Drive, Suite 102
Atlanta, Georgia 30338
Toll Free: (800) 232-NDSC
Local: (770) 604-9500
Website: www.ndsccenter.org
Email: info@ndsccenter.org
The National Down Syndrome Congress is a non-profit organization founded in 1973. The purpose of NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination on all aspects of Down syndrome. NDSC works to empower its members and all individuals with Down syndrome by creating a national climate in which all persons will recognize and embrace the value and dignity of individuals with Down syndrome.
National Down Syndrome Society (NDSS)
666 Broadway
New York, New York 10012-2317
Toll Free: (800) 221-4602
Local: (212) 460-9330
Fax: (212) 979-2873
Website: www.ndss.org
The National Down Syndrome Society was established in 1979 to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Since that time, this non-profit organization has become the largest non-governmental supporter of Down syndrome research in the United States. NDSS continues to raise public awareness about Down syndrome and discover its underlying causes through research, education and advocacy.
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